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Research on Aging
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Issues in Caregivers' Stress and Providers' Support

Carol M. Musil

Frances Payne Bolton School of Nursing, Case Western Reserve University, cmm4{at}po.cwru.edu

Diana L. Morris

Frances Payne Bolton School of Nursing, Case Western Reserve University

Camille B. Warner

Frances Payne Bolton School of Nursing, Case Western Reserve University

Hala Saeid

Frances Payne Bolton School of Nursing, Case Western Reserve University

This study examined whether support from care recipients' primary care providers affects the stress and health of caregivers. This two-year longitudinal study addressed changes in caregivers' mental and physical health, both self-assessed and evaluated by professional nurse practitioners in physical examinations, and the effects of provider support on caregivers' health. Randomly selected participants from three previous studies plus a group of volunteer Alzheimer's caregivers constituted the sample. Of 254 eligible individuals, 150 agreed to participate, but by time 2, care recipient deaths and other reasons had reduced the number of caregivers to 99. Participants showed significant increases in stress and service use but declines in all areas of health and in provider support. Provider support did not materially affect caregivers' health but had an indirect effect on caregivers' self-assessed health through rewards. Despite the need for bolstering caregivers' health, perceived support from care recipients' providers is limited.

Key Words: provider support • caregiver stress • caregiver rewards • caregiver health

Research on Aging, Vol. 25, No. 5, 505-526 (2003)
DOI: 10.1177/0164027503254624
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